Motor Neurone Disease (MND) is a fatal, rapidly progressive disease that affects the brain and spinal cord, attacking the nerves that control movement so muscles refuse to work. It can leave people locked in a failing body, unable to move, talk and eventually breathe. It has no cure.
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
We are a membership organisation with over 9,000 members forming a powerful national and local network that provides information and support alongside fighting for improved services.
We have over 7,000 active volunteers in England, Wales and Northern Ireland and around 170 paid staff, all dedicated to improving the lives of people affected by MND, now and in the future. Our support group assistants play a crucial part in helping us achieve that.
The MNDA branch for Gloucestershire usually holds a support meeting for those living with, or caring for someone with, MND. Typically the group meets the first Thursday of each month, between 2 – 4pm at St Andrews Church Office, Station Road, Churchdown, GL3 2JT. Sometimes the meetings have speakers, other times it is just a chance for tea and a chat. Sometimes there are trips out organised. Whatever the format of the meeting though it is a good chance for people to find support and advice from their peers. MND can often be a very isolating disease and the chance to meet regularly with other people who understand the pain and difficulties that it brings is very important.
The support meetings are planned and facilitated by a team of Support Group Assistant volunteers. They prepare for the meetings by arranging any speakers, booking any trip venues, creating resources for any activities and ensuring that if there is any information to be shared from the MNDA it is made available to all. During the meetings they make sure everyone is welcomed and feels included, so this might involve introducing any new people to the rest of the group. The Support Group Assistants also arrange and serve the refreshments and do the washing up afterwards, along with any tidying that is needed to return the venue to its original state.
MNDA can pay reasonable expenses incurred through this role. You also need to be aged at least 18 to take on this role (if you are under 18 there are still lots of ways that you can support MNDA – have a look at https://www.mndassociation.org/get-involved/ for some ideas) but there is no upper age limit.
If you would like more information before committing yourself this volunteer opportunity then please do not hesitate to drop me an email on
Jo.firstname.lastname@example.org or phone 0345 375 1839
Why get involved?
This is a great opportunity to do something practical for a charitable organisation and make a real difference to people living with MND in your local area. You’ll meet new like minded people and develop some great friendships with your fellow support group assistants and the group attendees, as this is, by its very nature, a sociable role.
If you are planning a career in events management, this is a great way to gain valuable experience in the charitable sector. It is also equally applicable to demonstrating and improving your skills in organisation and communication, as well as more general interpersonal skills.
How to get involved?
- Sign into your account or sign up to Volunteer Makers.
- Accept the challenge
- Await a response from the Motor Neurone Disease Association with more information
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